These aren’t your normal nonprofit events.
Our story
The Huntington’s Sports Club (HSC) is a movement-based community created to raise awareness and funds in the fight against Huntington’s Disease.
HSC was founded by Catie Cooper after losing her mother, Carrie Cooper, to Huntington’s Disease in March 2022. While her mom was in hospice, Catie spent those final weeks surrounded by family—sitting with her mom, holding her hand, and promising to turn her grief into action. She committed to building something that would honor families affected by Huntington’s Disease and help bring greater awareness to a disease that is often overlooked.
Huntington’s Disease is a progressive, hereditary neurological disorder that slowly takes away a person’s ability to move, think, and speak. There is currently no cure.
The Huntington’s Sports Club was created as a response to that reality. Through fitness and movement-based events, HSC brings people together to stand up for those who lose their ability to move—transforming physical movement into awareness, fundraising, and community support.
In 2023, HSC launched its first event, HIIT HD Back, working alongside the Huntington’s Disease Society of America. Since then, HSC has continued to grow through partnerships, events, and initiatives designed to keep Huntington’s Disease visible and to support the ongoing search for a cure.
HSC exists for a bigger purpose: to honor those we’ve lost, support families still fighting, and move together toward a future without Huntington’s Disease.
Our Mission
At The Huntington’s Sports Club, our mission is to use movement as a force for awareness, fundraising, and connection.
We create inclusive, movement-based experiences that unite people—whether or not they have a personal connection to Huntington’s Disease—to stand alongside HD families and support the fight for a cure.
Movement is at the core of everything we do. For many living with Huntington’s Disease, movement is something gradually taken away. We honor that loss by showing up, standing together, and moving with purpose.
Through events, partnerships, and community-driven initiatives, HSC raises awareness, funds research and support efforts, and builds a space where action meets impact.
Everyone is welcome at The Huntington’s Sports Club. When you move with us, you become part of something bigger—helping keep Huntington’s Disease seen, supported, and on the path toward a cure.
“Join the club & turn movement into impact.”
- Catie Cooper, Founder